As the main subject of the documentary Butterfly Girl, written and directed by Houston-based writer and director Cary Bell, lovely 18-year-old Abigail Evans appears to be a typical teenager -- moody, stubborn, and sometimes overly dramatic -- longing for her first alcoholic drink and someone to hold her who is not a parent. However, her everyday drama and challenges are far apart from the usual high school experience. Abbie was born with the life-threatening skin disease of epidermolysis bullosa (Eb), and has been homeschooled by her mother Stacie so that she can be safer at home or on the road with her father, Austin musician John Evans.
Much of Abbie's life has been spent in hospitals being treated for her genetic disease and the physical damage wreaked upon her hands, skin and esophagus. She depends on her mother as a caregiver, who does her laundry and housework. Unable to eat...
Much of Abbie's life has been spent in hospitals being treated for her genetic disease and the physical damage wreaked upon her hands, skin and esophagus. She depends on her mother as a caregiver, who does her laundry and housework. Unable to eat...
- 3/15/2014
- by Debbie Cerda
- Slackerwood
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